{"id":1915,"global_id":"iktyos.se?id=1915","global_id_lineage":["iktyos.se?id=1915"],"author":"1","status":"publish","date":"2026-02-12 23:35:54","date_utc":"2026-02-12 23:35:54","modified":"2026-02-12 23:35:54","modified_utc":"2026-02-12 23:35:54","url":"https:\/\/iktyos.se\/?tribe_events=sallsynta-dagen-umea","rest_url":"https:\/\/iktyos.se\/index.php?rest_route=\/tribe\/events\/v1\/events\/1915","title":"S\u00e4llsynta dagen – Ume\u00e5","description":"

V\u00e4lkomna att tr\u00e4ffa Riksf\u00f6rbundet S\u00e4llsynta Diagnoser och deras
\npatientf\u00f6retr\u00e4dare!<\/p>\n

Som medlem i Iktyosf\u00f6reningen s\u00e5 \u00e4r du \u00e4ven medlem i Riksf\u00f6rbundet
\nS\u00e4llsynta Diagnoser.
\nNu har ni m\u00f6jlighet att tr\u00e4ffa dem i Stockholm, Kalmar och Ume\u00e5.
\nSe mer info bifogat eller l\u00e4s mer p\u00e5 deras hemsida:
\nhttps:\/\/www.sallsyntadiagnoser.se\/kalendarium<\/a><\/p>\n

S\u00e4llsynta dagen
\nDen sista februari uppm\u00e4rksammas s\u00e4llsynta h\u00e4lsotillst\u00e5nd runt om i hela
\nv\u00e4rlden efter ett svenskt initiativ som startade 2008. \u2060
\nDet finns idag mer \u00e4n 8000 olika s\u00e4llsynta diagnoser, dvs. diagnoser som
\nber\u00f6r h\u00f6gst 5 personer p\u00e5 10 000 inv\u00e5nare. Sammanfattningsvis \u00e4r det
\nn\u00e4rmare en halv miljon m\u00e4nniskor som lever med en s\u00e4llsynt diagnos i
\nSverige och 300 miljoner i v\u00e4rlden. Inte s\u00e5 ovanligt allts\u00e5.\u2060<\/p>\n

Fortfarande \u00e4r kunskapen l\u00e5g, inte bara hos allm\u00e4nheten, utan ocks\u00e5 hos
\nm\u00e5nga politiker, beslutsfattare och v\u00e5rdgivare. D\u00e4rf\u00f6r \u00e4r S\u00e4llsynta
\ndagen en viktig uppm\u00e4rksamhetsdag som s\u00e4tter ljuset p\u00e5 det s\u00e4llsynta.
\nDet \u00e4r ocks\u00e5 en dag att k\u00e4nna samh\u00f6righet och stolthet.\u2060
\nTillsammans \u00f6kar vi kunskapen om det s\u00e4llsynta!\u2060<\/p>\n

—<\/p>\n

Linda Bengtsson
\nStyrelseledamot
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